producing a report on trauma support for families of children and adults with learning disabilities and/or autism

From CBF: The Challenging Behaviour Foundation (CBF) is working with Respond, Three Cs and The Tizard Centre to provide NHSE with a report and specification on trauma support for families of children and adults with learning disabilities and/or autism.

CBF is working on research into what trauma support already exists, families’ experiences and what they think would help and has worked with a Family Carer Advisory Group to create a questionnaire for families to complete.

We would be very grateful if you could share this online questionnaire (https://www.surveymonkey.co.uk/r/Trauma_Support )  

The information gathered from this questionnaire will serve as a strong basis for evidence of the need for trauma support for family carers and will be used to influence providers of support and services.

Some families of individuals with learning disabilities and/or autism who have contributed to the development of this questionnaire have provided the following:

“Trying to find a way to get the right support and appropriate services, as family carers, can often be incredibly difficult and very stressful. We need the people making decisions to understand this and better support us. If you are able to contribute in any way to this questionnaire, we will do everything we can to make sure your challenges are understood and help shape future support.”

The questionnaire will close at 9am on Monday 16th March 2020.

More information is available from This email address is being protected from spambots. You need JavaScript enabled to view it.

CBF: www.challengingbehaviour.org.uk

Please share this survey with families. If you have any questions or comments about the project, please do get in touch with CBF.

An opportunity for children to share with government their views on special educational needs and disability issues

From Newsletter:

“Following the success from our initial wider engagement last year, the Council for Disabled Children are opening up expressions of interest for a second series of wider engagement.

“Making Participation Work is delivering a series of wider engagement with seldom heard disabled children and young people, and children and young people with special educational needs. It is an opportunity for them to share with the government their views on a special educational needs and disability issue that is important to them. 

“The Council for Disabled Children will come and deliver a focus group with your group on a pre-agreed topic. We will share the findings of the focus group with you and with the Department for Education."

For more information please contact Charlotte O’Halloran, This email address is being protected from spambots. You need JavaScript enabled to view it.

From IASSIDD website: ‘Adults with intellectual and developmental disabilities (IDD) have a right to healthcare that meets their specific health and developmental needs.

'As members of the health sector, we are actively exploring the nature and extent of the inequalities often faced by this marginalized group.

‘To bolster these efforts, the International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) Special Interest Research Group and Surrey Place are hosting 20/20 & Beyond, a two-day conference that will raise awareness, increase knowledge and connect policy and practice to improve the health of individuals with IDD. 

‘This annual conference comes back to Canada after 11 years. It will be held from June 16 – 17, 2020 at the University of Toronto Chestnut Conference Centre in Toronto, Canada and welcomes participation from a range of interested groups including researchers, public health professionals, policy-makers, disability service providers, health care professionals and advocates.’

Visit: http://www.iassiddhealthsirg2020.com/