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Interconnections Worldwide Working internationally to share information, help build knowledge and support teamwork around babies, children and young people who are disabled, marginalised or vulnerable The home of Team Around the Child (TAC) and the Multiagency Keyworker |
Ranilo Sorongon of the NORFIL Foundation is seeking any sort of manual or guidelines for the meaningful participation in discussion and decision making of children with autism, ADHD, cerebral palsy, deafness, intellectual impairment, seizure disorder, etc.
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The committee are now accepting written evidence
The JCHR have been taking evidence on the inappropriate detention of children and young people with learning disabilities and autism. The committee has taken evidence both from individuals with learning disabilities and their families, and from Care Quality Commission and NHS England.
The committee are now accepting written evidence on the detention of children and young people with learning disabilities and autism and we would encourage you to respond. Submissions should be no more than 1,500 words and more information can be found here: https://www.parliament.uk/business/committees/committees-a-z/joint-select/human-rights-committee/news-parliament-2017/youth-detention-further-evidence-launch-17-19/
The questions of interest for the written submission are as follows:
Whether the Government’s Transforming Care programme, which aims to significantly reduce the number of those detained inappropriately, has been successful and if not, why not.
If it has not been successful what needs to be done to ensure that the numbers detained are reduced more rapidly.
Whether the human rights of children and young people with learning disabilities and/or autism who are detained in mental health hospitals are being breached.
If, so how are they breached and what needs to be done to better protect them?
The CBF will be submitting a response to these questions, taking the opportunity to highlight the failure of the Transforming Care programme. We would welcome any comments/ suggestions for inclusion in our response.
The previous evidence sessions can be watched here:
Individuals with learning disabilities and/or autism and family carers: https://www.parliamentlive.tv/Event/Index/346f38d5-7438-47f8-9aca-bcb9d95e4384?fbclid=IwAR2nz7JFqrDepa7AeYTr7D3ba9Wo584Cfw89Z3zR7KSX6e3t9PRysXu0Fls
CQC and NHS England: https://parliamentlive.tv/event/index/880a858f-5ba8-4fe5-b4c2-fe59b1210609
This item came to TAC Bulletin from The Challenging Behaviour Foundation
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From their website:
Located in a fully accessible building five minutes’ walk from Kentish Town underground and rail stations, our comfortable and reasonably priced facilities offers the space and services you need to run a successful event.
From CanChild: Parenting is a tough task! Parenting a child whose development might be complicated by a disability can be even harder. We know that parents want to do a good job with their kids.
We also know that there can be a lot of extra stress and strain on parents as they work to do all the right things when their child has a disability.
We wish to engage with parents raising children with developmental challenges. We want to find out if our planned series of five weekly online interactive workshops, called ENVISAGE: ENabling VISion And Growing Expectations, is useable, understandable and acceptable to families of children with disabilities.
Our goals for this project are (i) to share with parents and caregivers some of the new and different ways we are thinking and talking about childhood 'disability', and (ii) to refine workshop content based on caregiver knowledge, experience, involvement and feedback.
We would love to know what you think!
If you would like to find out more, have any questions, or would like to express your interest to be involved in the study, please do not hesitate to contact:
Dr Kinga Pozniak
CanChild and McMaster University
Ontario, Canada
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Professor Peter Rosenbaum
CanChild and McMaster University
Ontario, Canada
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Tel: 905-525-9140, ext 27834
Cartoon © Martina Jirankova-Limbrick 2011