Interconnections Worldwide

Working internationally to share information, help build knowledge and support teamwork around babies, children and young people who are disabled, marginalised or vulnerable

The home of Team Around the Child (TAC) and the Multiagency Keyworker

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I was unemployed for 17 years altogether. Then a Mencap Pathway scheme set me up doing work ex­perience in a college post room

Joe3It's not easy doing a CV if you have not had a chance to do much with your life and you have nothing to put on it! I would apply for jobs advertised in shop windows and I would get interviews, but I was never successful. They never told me what I was doing wrong. The Job Club people just said 'sell yourself', but that's hard, and the more rejections you get, the harder it gets. 

I would always apply for shop work but when I did some tests many years later to see what sort of job I was suited for it came out as 'office work'! That was after I'd moved to a new area and they seemed to be more geared up to helping you look for work. I was unemployed for 17 years altogether. 

Then a Mencap Pathway scheme set me up doing work ex­perience in a college post room. They said I was good and they created a new role just for me. When they told me I was getting a part-time paid job I was in tears I was so happy. I was 34 and it felt like my life was beginning at last! 

I've been working there for 13 years and it has changed my life. Earning a wage gives you self-respect. You can pay your own way and hold your head up high. I have made a lot of friends through work and I think I am a more confident per­son. Working part-time suits me as it means I can do other things, like be the editor of OurSay magazine. 

So I would say to young people with learning disabili­ties and those who support them, ask early on about work experience and make sure people are given the support they need to get a job, because they will end up with a better life. And they shouldn't give up trying, even if, like me, they get nowhere at the beginning. 

The government says it wants to see 48 per cent of people with moderate and severe learning disabilities in work. That is going to be a tough target to achieve. But I think it is the right way to go to try and ensure that people with learning disabilities have the same life chances that other people take for granted. 

This is an extract by from an Opinion piece by Joe Mellone in IQJ, Issue 9 in April 2010. The full article is here.

Research alerts from HealthMatters Community Academic Partnership

Research_AlertsBelow are three research alerts: 1. These tests are easy to do and would help persons with disability, family members and health workers know when someone has an increased risk for falling, losing independence or even ending up in the hospital. Using them regularly might help health workers track when someone might need extra assistance to avoid injury, maintain independence and stay healthy. Click here.

2. Results show that children with developmental coordination disorder who undergo a three-month program of intensive Taekwondo training experience improvements in knee muscle strength and static single-leg standing balance control, but do not benefit from improved reactive balance control. With three months of daily Taekwondo practice, children with this condition can catch up to typically developing peers in terms of knee muscle strength and static single-leg standing balance performance. Click here.  

3. Two-thirds (~66%) of the individuals with autism had received psychotropic drugs during the study year. Majority of the individuals with autism were taking anti-psychotics (~39%) or/and CNS stimulants (~32%) followed by anti-depressants (20%), and others. The total cost for the psychotropic drugs paid for by the state Medicaid was ~$2 million during the study year. Adolescents and young adults (aged 11 to 21 years) were twice as likely to have prescription for psychotropic drug as compared to children (≤10 years old) with autism. Whites were more likely to have a prescription for psychotropic drugs than blacks. Click here.

HealthMatters Alerts: www.HealthMattersProgram.org

Disabled schoolboy wins right to guitar lessons

guitar3UK news story by Stephen Naysmith: A disabled schoolboy has won a landmark ruling that he can take part in after-school guitar classes after he was refused permission because of his condition. Thousands of other youngsters with disabilities are expected to benefit following the ruling in the discrimination case against South Lanarkshire Council. 

Thomas Pettigrew, 10, a pupil at St Hilary's Primary School in East Kilbride, had a guitar bought for him by his parents so he could take part in the sessions, and they asked the local authority to provide him with additional support, including for assistance in using the toilet and other personal care and moving and holding his guitar. Thomas, who has several chronic conditions that have a significant effect on his ability to carry out normal daily activities, needs help to adjust his guitar, take it in and out of its case, and turn the sheet music. However, he can hold and play the instrument and use large-print music sheets. 

South Lanarkshire refused the Pettigrews' request, claiming sufficient support was in place. An additional support needs tribunal ruled it should not have denied Thomas the chance to participate. The case, the first of its kind in Scotland, has been welcomed by human rights campaigners for establishing that inclusion should not "end with the school bell" and that extra-curricular activities are covered by equalities laws. 

The Equality Act requires schools to make reasonable adjustments to avoid substantial disadvantage to any disabled pupil. 

Due to additional support already provided by South Lanarkshire Council, Thomas has been able to take part fully in the school curriculum, and some extra-curricular activities such as a trip to the theatre. In finding South Lanarkshire had unlawfully discriminated against Thomas because of his disability, the tribunal considered guidance issued by the Equality and Human Rights Commission on making reasonable adjustments for disabled pupils.

They found it had not met the duty to make reasonable adjustments and that Thomas was "substantially disadvantaged" from engaging in the club, adding: "His health and safety is compromised as a result. His additional support needs are not met.

This is an extract from a story in Herald Scotland of 15th June, 2013. The full story is here.

The Academic’s Guide to Self-Publishing

selfpubguide2This route particularly benefits more independent-minded writers who want to reach audiences on their own terms, bypassing the usual publishing games involving pitches, agents, editing for marketers, and book tours. It grants them an opportunity to share what they have to say with readers who want to listen. Traditional publishing does not always allow that, no matter how insightful or worthy an author may be. More here.

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