Interconnections Worldwide

Working internationally to share information, help build knowledge and support teamwork around babies, children and young people who are disabled, marginalised or vulnerable

The home of Team Around the Child (TAC) and the Multiagency Keyworker

planes5elo

Disabled children: a legal handbook

legal handbook coverDisabled children: a legal handbook is an authoritative yet accessible guide to the legal rights of disabled children and their families in England and Wales.

 

The authors expertly navigate the many, often over-lapping, sources of law, explaining the difference between what public bodies must do to support disabled children and that which they may do.

 

The handbook aims to empower disabled children and their families through a greater understanding of their rights and entitlements.

 

It is essential reading for the families of disabled children, their advocates and lawyers, voluntary and statutory sector advisers, commissioners, managers and lawyers working for public authorities, education, social and health care professionals, students and academics.

 

Copies of this handbook can be ordered from the Legal Action Group website - click here

PMLD Link – a new look and a new website – highly recommended!

PMLD link coverPeter Limbrick writes -

The focus of the new look Spring Issue is

'Speaking Up –Being Heard'.

The standard is as high as ever with articles on intensive interaction, the ethical dilemma of too much listening and responding, 'listening' to challenging behaviour and communication as a human right for people with PMLD – and much more.

Visit the website at www.pmldlink.org.uk

To subscribe –

Carol Ouvry: This email address is being protected from spambots. You need JavaScript enabled to view it.

Disabled children's benefits cut by 50% under new proposals

 
Campaign warns that cuts could push thousands of families into poverty

The Every Disabled Child Matters campaign (EDCM) warns that under new Government proposals, disability premiums for thousands of families with disabled children will be reduced by £1358.76 per year.

Last week, the Government outlined plans to change disability premiums within Child Tax Credits or Income Support under the Universal Credit. In a move to align child and adult premiums the Government has decided to dramatically cut disabled children's benefits for up to 88,000 families.

Laura Courtney, EDCM Campaign Manager says:

"Families with disabled children experience very high unavoidable costs. They are also more likely to be on low incomes or be out of work than other families, due to the pressure of caring responsibilities. This cut in financial support will further confound the issues that families with disabled children on low income face and is likely to push many more families into poverty.

We hope that the Government will take the opportunities available during the course of the Welfare Reform Bill to rethink this proposal, and to find a way to ensure a clear transition from childhood to adult disability benefits that does not result in a dramatic reduction of support for disabled children."

Diane Smith, Mum to a 16 year old daughter with special needs says:

"This would be yet another direct cut and a reduction to the income of families who need it most. Why not look at continuing the premium as it currently stands into adulthood? Just because your child has a birthday does not mean their needs change."

These benefit premiums are provided to help thousands of the lowest income families with disabled children to meet the extra costs incurred when raising a disabled child. These costs include higher utility bills, additional laundry requirements, funding safety measures within the household, buying additional clothing for their child, meeting their child's specific dietary requirements. For the time being, the changes will affect new claimants once the Universal Credit is introduced rather than families who are already in receipt of these benefits, but it is unclear how long this protection will last.

Disabled children are disproportionately likely to live in poverty and have poorer life chances than non-disabled children. 'Counting the Costs', a survey by Contact a Family, demonstrated that almost a quarter of families with disabled children are going without heating (23%) and that one in seven (14%) are going without food. EDCM fears that this move will mean that families with disabled children who are out of work or on a low income, will no longer be able to meet the high household costs they face as a result of their child's impairment. As a result, they could significantly increase child poverty in these households.

EDCM - www.edcm.org.uk

Blackburn families seek to safeguard KIDS' short breaks through the courts

 

Council Forced To Maintain Funding For over 20 Families Until

Court Case Hearing

COUNCIL LEADERS in Blackburn are at the centre of a High Court legal challenge following their decision to cut short breaks funding for over 20 local disabled children.

The judicial review proceedings, which have been launched by two families on behalf of their children (Child A and Child B), seek to overturn Blackburn with Darwen Borough Council's decision to withdraw funding for the short breaks service it has been providing through national disabled children's charity KIDS.

The families, who were told late last year that the Council was no longer willing to support the service from April 2011, have instructed national law firm Irwin Mitchell to fight the case on their behalf as they believe the Council has acted unfairly and unlawfully.

The case will be heard on 31 May 2011 and in the meantime Irwin Mitchell has successfully secured a Court Order to ensure the care packages remain in place for all 21 families affected until a decision by the court is made.

Child A is a severely disabled 7 year old boy with a range of complex needs. He does not have the ability to talk and is unable to perform basic daily tasks such as dressing himself and eating. The care provided by KIDS includes two hours of short breaks on a Sunday during which time he takes part in community-based activities.

The other claimant, Child B, is a ten year old girl with dyspraxia which results in her suffering a number of physical injuries. Each week KIDS provides her with two short breaks including dance lessons and trips out to the cinema or bowling.

Commenting on the decision to launch judicial review proceedings and the importance of the care provided by KIDS, Child A's mother said: "I believe that action is needed in the present case in order to stop the proposed changes that would massively impact in an extremely negative way upon children with substantial needs.

"My son is a desperate situation in terms of the medical complexity in his conditions. To take away the service that he is presently in receipt of on Sunday would be totally catastrophic for him. It would break his entire routine and would also inhibit his excellent development to date."

Contact Details:

David Shirt

PR Manager

Irwin Mitchell

Tel: 0161 838 3094

Mob: 07720 509912

This email address is being protected from spambots. You need JavaScript enabled to view it.

 

share your information  Cartoon © Martina Jirankova-Limbrick 2011