Co-development of the ENVISAGE-Families programme for parents of children with disabilities: Reflections on a parent–researcher partnership

By Kinga Pozniak, Andrea Cross, Rose Babic, Vicki Cavalieros, Rachel Martens, Peter Rosenbaum, Christine Imms, Monika Novak-Pavlic, Abha Balram, Debra Hughes, Bridget O'Connor, Laura Miller. First published: 22 May 2022

Introduction

In childhood disability research, the involvement of families is es

Views of Parents of Children With Down Syndrome on Early Intervention Services in Turkey. Problems, Expectations, and Suggestions

By Tomris, Gozde PhD; Celik, Secil PhD; Diken, Ibrahim Halil PhD; Akemoğlu, Yusuf PhD

Abstract

'Perceptions of parents of young children receiving early intervention are important to understand. Parents have valuable opinions on the delivery of early interventions services and can provide critical f

Parental perspectives on care for sleep in children with cerebral palsy: a wake-up call

Paper by Raquel Y. Hulst, Jeanine M. Voorman, Sigrid Pillen, Marjolijn Ketelaar, Johanna M. A. Visser-Meily & Olaf Verschuren

Results

In total, sixteen themes were identified across the three domains. Within the families’ Current situation, parents expressed various issues concerning the care f

The dimensions of white matter injury in preterm neonates

By MireilleGuillot and Steven P.Miller

Abstract

White matter injury (WMI) represents a frequent form of parenchymal brain injury in preterm neonates. Several dimensions of WMI are recognized, with distinct neuropathologic features involving a combination of destructive and maturational anomalies. Hy

Basic issues around wireless and 5G – relevant to every country

The issues surrounding the deployment of wireless technology infrastructure touch every aspect of our lives, from safety and security to health and property values -

- They include increased fire risk, greater power consumption, invasion of personal privacy, lack of insurance, threats to the environ

Kids Brain Health Network bridges the gap between science and families

connecting Canada’s leading researchers...to help kids live their best lives

From their website

Our research makes earlier diagnosis possible. We evaluate new and effective treatments, find out what works, and explore better ways to support children and their families.

Watch this two minute v

ShonaquipSE Compass Impact Report. This work in S. Africa is driven by commitment to children and families. It can be a guide for many countries

‘We recognise the combined power of changing behavior and influencing systems by focusing on the quality of practice’

From their website:

Welcome to our Annual Impact Report: April 2021 – March 2022!

Through our work during the past year, we embraced the perspectives of families, persons with disabi

Dads of kids with disabilities across Canada - Can you help with this research?

Are you a father who has a child who has been receiving developmental, medical or behavioural services

- (for example occupational, physical, speech or behavioural therapy) for at least 6 months in the past 5 years?

Researchers at CanChild Centre for Childhood Disability Research, McMaster Universi