The ICPCN (International Children's Palliative Care Network) Charter

Sue Boucher

In 2008 ICPCN published a Charter of Rights for children with life-limiting or life-threatening conditions which they wish to see accepted and ratified by governments and health departments around the world. In the spirit of the UN Convention on the rights of the child, the Charter sets out the international standard of support that is the right of all children living with life-limiting and life-threatening illnesses worldwide, and their families...

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Issues for practitioners in supporting grandparents

Ray Murray

Grandparents and parents are likely to experience similar reactions to the diagnosis of disability. Grandparents also grieve for their own child – one of the parents. While grandparents have significant roles within the family they are also a potential source of significant support for parents...

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A Town Like Alice – Episode 7

Deborah Berkeley

'Sometimes, you've got to listen to your inner life coach. I swig my horrid coffee. I think about the exercise, I think about the career. I think about Vincent, in charge of his world. I think about Alice, coyly smiling up at Samuel. I think about Alex, comically overloaded this morning with book-bag, packed lunch and football kit. I leave the café, head to the charity bookshop, and emerge a happy hour later with a bagful of murder mysteries.'

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Learning through experience: St Margaret's School successfully teaching pupils with Rett syndrome.

Jan Cunningham

St Margaret's School ...has pioneered its own curriculum especially for pupils with profound and multiple learning difficulties (PMLD) and complex health needs. Through the development of its multi-sensory Profound Education Curriculum the school has been able to support pupils with Rett syndrome, a rare neurological disorder that primarily affects females...