‘Crippled, Handicapped, Disabled: Living beyond labels’ an exhibition in London, UK, April 2016 - free

QEF80 Queen Elizabeth’s Foundation is a national disability charity based in Leatherhead, Surrey and works with people with physical and learning disabilities and acquired brain injuries to help them gain new skills and increase independence for life.

From 20-24 April QEF is holding an exhibition at gallery@oxo, Oxo Tower Wharf, London’s South Bank. It is titled ‘Crippled, Handicapped, Disabled: Living beyond labels’ and examines assistive technology, mobility aids, support to help disabled people train for employment, and how attitudes to people with disabilities have changed in the 80 years the charity has existed.

The opening times are 11:00am until 6:00pm daily and admission is free. There is no need to register, please just come along on the day.

For more information about QEF please go to http://qef.org.uk/

SCPE: a collaboration of registers of children with cerebral palsy

SCPE is a collaboration of registers of children with cerebral palsy which formed in 1998 and since then has undertaken successive programmes of work funded by the European Union (EU).

The work has brought together paediatricians, paediatric neurologists, epidemiologists and therapists from across Europe.

The aim of the SCPE network is to disseminate knowledge about cerebral palsy through epidemiological data, to develop best practice in monitoring trends in CP, and to raise standards of care for children with cerebral palsy.

Why have a register of children with cerebral palsy?

Cerebral palsy occurs in about two babies per 1000 live births. It is important to measure trends in prevalence over time and to understand better the causes of the cerebral palsy. Registers of all children born in a region with cerebral palsy can help with this. They can also help with planning services and allow parents of children with cerebral palsy to be told about research projects.

Visit: http://www.scpenetwork.eu/en/about-scpe/

Bridging the gap: Strengthening relations between hospices and Muslims – UK report

Hospices and NHS services must capture data about religion and ethnicity much more consistently from people using their services – as glaring gaps in this data are preventing effective planning of palliative and hospice services for Muslim patients and their families. Similarly, local authorities should record this data for people who have died, as part of the death registration process, to help monitor patterns in end of life care provision.

Bridging the Gap: Strengthening relations between hospices and Muslims of Britain looked at the top five local authorities in the UK where there is a significant Muslim population (over 40%). It identifies the lack of data on religion and ethnicity as a key barrier in planning and monitoring services for people in Muslim communities, including both ageing Muslims and children with life-shortening conditions

Free download: http://www.togetherforshortlives.org.uk/professionals/resources/request/8698

New Paths to Inclusion Network: Achieving change through inclusive and person-centred support for persons with disabilities

paths80 ‘How can we make sure that support services respond to the individual needs of persons with disabilities and help them live included in the community? What kind of training & learning is necessary to make this happen?’

The New Paths to InclUsion Network brings together organisations of persons with disabilities, service-providers, universities and research centres from fourteen European countries and Canada whose common aim is to achieve change and support organisations to deliver community based and person-centred services for people with disabilities.

The Network builds on the legacy of the European project New Paths to Inclusion Network (2009-2011) which helped to advance Person Centred Planning and Practice in support services across Europe.

Visit and join: http://personcentredplanning.eu/index.php