Interconnections Worldwide

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Government risks premature SEN legislation

'Pathfinder Schemes will become law regardless of the outcome of the trials – which raises real concerns, given the potential problems with the Schemes.'

Comment for the TAC Bulletin by John Wright

This May the Government announced that their Children and Families Bill would improve the system for assessing and providing for children's special educational needs and extend Local Authorities' duties to cover young people up to the age of 25. Although this will be welcomed by parents whose children have suffered from delays in assessment in the past, and by parents of older students with sen/disabilities, caution is more appropriate than jubilation at this early stage: the wording of the new legislation will need to be carefully scrutinised to ensure that speeding-up assessments and extending the protection of sen law to twenty-five year olds (which will inevitably place an increased burden on LAs' budgets) will not be 'paid for' by a weakening of children's entitlement to special educational provision across the whole of the age range. 

There is, in addition, a problem with timing. The Government is to produce a Bill this summer which will legislate for changes which have only just started being trialled in the Pathfinder Schemes.  If the criterion for success of these Schemes is improved outcomes for children with sen this will clearly be impossible to gauge in the time-scale the Government have adopted. In short, the Pathfinder Schemes will become law regardless of the outcome of the trials; which raises real concerns, given the potential problems with the Schemes. 

This article seeks to alert those who work with children with special educational needs and/or their parents to possible pitfalls in the three main Pathfinder Schemes being trialled. 

1 A new assessment process to replace the statutory SEN assessment

The DfE describe this Pathfinder Scheme as: "Bringing together the support on which children and their families rely across education, health and social care ... We will test how to improve a multi-agency approach to assessment and planning. Currently, local authorities often take decisions based on correspondence with other agencies, and we would like to see a less bureaucratic and less adversarial approach where agencies come together to agree their support with parents, and the responsibilities of different agencies are clear."

The risks in a 'less bureaucratic' approach (though less 'formal' would be a more neutral description) where professionals and parents meet together with the aim of reaching agreement, are:

(i) That this may diminish the discretion which professionals have under the current system to put in writing, for LAs and parents, their unvarnished opinions on children's needs and the provision required to meet them. It could amount to a threat to a professional's integrity to require them to agree with colleagues what provision a child requires. It may also undermine the principle of the multi-professional approach which underpins the current approach by requiring LAs to seek separate advices and themselves make the balancing judgment when opinions differ.

(ii) The less formal approach may deny parents professional opinions in written form, which they can obtain advice on (including second professional opinions) and on which the success of a subsequent appeal to SENDT may depend.

(iii) Less confident parents, facing professionals and the LA Officer, may well feel compelled to accept as appropriate provision for their child which falls short of meeting their needs. There is clearly a risk to the children of less confident parents when the assessment process becomes 'less formal'.

(iv) LAs have no procedures set out in law governing the new experimental assessment process: there are no time limits, duties to consult all relevant agencies, or duties to share reports with parents. There is no duty to finalise the process by deciding to statement or not, or to offer a 'Plan' (see below) or not. There is no legal remedy if the LA delays or fails to come to any decision. There is no appeal right against any result.

For these reasons, it is important that parents realise that their LA cannot divest themselves of their current legal duty to assess a child by virtue of having a 'pathfinder' assessment scheme in place and that parents can still request statutory assessment.

Parents who chose to cooperate with the new assessment experiment would be wise to ask for professionals' opinions in writing before the informal meeting takes place in order that they can consider their response to the opinions and, if need be, seek advice on them in advance of a meeting.

2 A single 'Education, Health and Care Plan' to replace Statements of SEN

The DfE have stated that:

"The new 'Education, Health and Care Plan' will provide the same statutory protection to parents as the statement of SEN and will include a commitment from all parties to provide their services, with local assessment and plan."

In order to 'provide the same statutory protection' the EHCP must impose on LAs

(i) the duty to set out all of the assessed needs of a child as in the Statement's Part 2;

(ii) the duty to set out objectives to meet each of the needs in the Statement's Part 3(a);

(iii) the duty to specify provision as in the current Part 3(b) to meet each of the special educational needs in the current Part 2 and each of the objectives in the current Part 3(a);

(iv) the duty to 'arrange' the special educational provision specified in the current Part 3(b);

(v) the duty to specify in Part 6 any non-educational provision which the authority propose to make available or which they are satisfied will be made available by a health authority, a social services authority or some other body;

(vi) the duty on governors of a maintained school named in Part 4 to admit the child;

(vii) the duties to Review and amend a Plan as with Statements LAs maintain;

(viii) the duty to maintain the Plan as long as it remains necessary.

If all these duties are adhered to by LAs piloting the EHCP then children will be protected just as they are now by a Statement. However, there are already reports of parents being told by LA Officers that the 'system' is changing this year and not to expect their children to be assessed or to receive statement.

It is important to remember that the law has not changed: the Pathfinder LAs are still bound by their duties to identify, assess and statement those children whose special educational needs require the LAs to determine and arrange their provision.

In addition, the Government have made it clear that the duty to 'arrange' provision will not apply to Health or Social Services agencies in relation to the Heath and Social Services provision detailed in an EHCP, so children will be no better off with regard to their legal entitlement to these provisions than they are at present.

They may even be worse off as at present LAs have a legal duty to list non-educational provision which they are 'satisfied' will be provided by another agency or which they will provide themselves (see V, above). Under the EHCP the Government seem to be removing the LA's role as 'fall-back' provider and simply expecting the other agencies to provide non-educational services without actually placing them under a legal duty to do so.

3  Direct payments to parents for Part 3 provision

The DfE explanation here is:

"Personal budgets for parents of children with Statements of SEN so they can choose which services best suit the needs of their children."

Direct payments are meant to be an extension of personal budgets, familiar to many parents of disabled children who use them to pay for respite and other care. Direct payments will require a parent's agreement (and continued agreement). There has to be preliminary negotiation with regard to amount and kind of provision to be purchased and the extent to which it can cover the provision set out in Part 3 of a Statement. Parents will receive a written 'offer' from an LA. Money cannot be used to 'buy' or subsidise a placement in a school, but can meet the costs of provision made at a school (and when intended for this purpose an LA has to consult the school concerned before agreeing the payment). A parent can withdraw their consent at any point and an LA can claw back payments if they have been misspent.

The Direct Payment Order is at: http://www.legislation.gov.uk/uksi/2012/206/contents/made

Even when direct payment is agreed, an LA retains its strict legal duty to 'arrange ' the provision in Part 3 of a Statement and retains other duties outside the payment such as home-school transport if that is not covered by the direct payment agreement.

Although this scheme may be welcomed by some parents (e.g. those home educating, who at present receive no support from LAs, or those seeking independent school placements, where the direct payment may be used to supplement the fees they are paying) it could well be against children's best interests when their parents opt for direct payments in response to problems with their child's provision such as:

  • A vague statement leading to unsatisfactory provision
  • LA failure to arrange the provision specified on a Statement or in an EHCP
  • A discriminatory use of exclusion by a head teacher
  • Discriminatory bullying by other pupils, or staff, which the head and the governors are failing to respond to
  • Anxiety causing school-refusal and leading to an inappropriate use of School Attendance Orders as a sanction by an LA
  • When legitimate complaints about their child's provision receive the response from LA Officers and/or head teachers: 'If you don't like it, get a personal budget and see if you can do any better.'

It will be vital to ensure that Direct Payment Schemes are not used as bribes to get parents to remove children from school against their children's best education interests.

John Wright is a legal support worker for the national charity IPSEA (Independent Parental Special Education Advice). The article expresses his personal views, although IPSEA is anxious to receive feedback on the operation of all of the Pathfinder Schemes (0800 018 4016).

This link will take you to the DfE site with the list of LAs running Pathfinder Schemes: 

http://media.education.gov.uk/assets/files/pdf/f/final%20list%20of%20pathfinders%20and%20options.pdf

This is the email address to contact IPSEA about how the schemes are working: This email address is being protected from spambots. You need JavaScript enabled to view it.

Safe from the Start in Tasmania

teddy_tasm"A child who lives with violence is forever changed, but not forever 'damaged'– and there is a lot we can do to improve their future prospects." (Barker/Cunningham, 2007)

Safe from the Start is an innovative Australian evidence-based project developed in partnership with two universities addressing the impact on children who have been exposed to family or domestic violence.  The project (Resource Kit & Training Program) won the top Australian Crime & Violence Prevention Award in 2011 and a Child Protection Award.

Dr Erica Bell (UTAS) conducted the 'States of Mind' research that considered the specific needs of children aged 0-5 exposed to domestic violence living in refuges. * www.salvationarmy.org.au/salvwr/_assets/main/documents/Tasmania/states_of_mind.pdf

The research findings covered the need for services working with children to recognise that children need individual responses, to identify best practice resources and provide training to equip workers and parents to work therapeutically with children.

Dr Angela Spinney (Swinburne University, Vic) conducted the 'Safe from the Start' action research project which demonstrated that children being exposed to violence in the early years can cause severe effects on brain development and increases the risks of children adopting violent behaviour, addictions to alcohol and drugs and mental health issues later in life, and that working within a therapeutic, positive and early intervention approach can decrease these risks. 

The SAFE FROM THE START RESOURCE KIT consists of 20 special topic books, DVD, CD, puppets, brochures and posters, Over 500 have been distributed nationally, including to Canada, New Zealand and Singapore.

A  TRAIN THE TRAINER program has been conducted in all Australian states and will be soon be available in New Zealand.

An Indigenous and Culturally and Linguistically Diverse project is currently being developed and these resources will be added to the existing kits. 

For information about future training or to order resources contact:

Nell Kuilenburg – This email address is being protected from spambots. You need JavaScript enabled to view it.

http://www.salvationarmy.org.au/contactus/tasmania-division/safe-from-the-start-project.html

Global self-help network launched to support people with limb differences

Ambitious project for online community founded by Thalidomide survivors, aimed at uniting limb deficiency groups world-wide

A new online community is being officially launched on Monday May 21st 2012, that aims to connect thousands of families across the globe who are affected by congenital limb differences (Dysmelia).

The new website for the DysNet project goes live today, aiming to provide up-to-date information, support and signposting as well as a wealth of hard-to-find research and historical documentation.

Individuals around the world will be encouraged to contribute to the online knowledge-base, to share expertise and resources that may benefit others in a similar position.

It's the brainchild of a group of Thalidomiders from across Europe, who realise that, although they are approaching fifty years old, there are many, younger people with congenital limb differences in the world with whom they can share their experiences of how to lead independent and fulfilled lives.

This year marks the fiftieth anniversary of the Thalidomide generation. Half a century ago, the thalidomide drug was finally withdrawn from circulation in the face of overwhelming evidence that it caused birth defects, most characteristically, shortened arms and legs.

The group, who have formed a pan-European Non-Governmental Organisation called EDRIC (European Dysmelia Reference Information Centre),  chaired by Thalidomider and former BBC veteran, Geoff Adams-Spink, are making sure that the knowledge they have gained is preserved and built upon.

Geoff said, "There are many small support groups dotted around Europe and the rest of the world of people with various forms of dysmelia. We want to bring all of their knowledge together so people can find the answers they need and also contribute to the database from their own experiences. We believe this will  improve the lives of people with limb differences everywhere."

The ambitious project kicked off in April, establishing online presences on social networking sites that are already beginning to flourish. With the launch of the website (www.dysnet.org), DysNet will be able to help share its resources globally.

Björn Håkansson, Deputy Chairman and Treasurer of EDRIC, said, "Thalidomiders are a very determined group of people and we've solved many problems in our lifetimes. We want to pass this 'can do' attitude on to future generations of people affected by limb differences. Now we have the internet and social media, we have the ability to do just that."

DysNet is also launching an online community on RareConnect, a rare disease community run by EURORDIS, the European Rare Disease organisation and NORD, the National Organisation for Rare Disorders.

Online Community Manager at EURORDIS, Rob Pleticha, said, "We're delighted to have DysNet join our RareConnect network. The new DysNet RareConnect community will offer a trusted, monitored environment for everyone involved with dysmelia, whether personally or professionally, to make connections."

This will be available to people in the five major EU languages (English, French, German, Italian and Spanish) and should help to connect groups who are currently unable to communicate freely because of language barriers.

share your information  Cartoon © Martina Jirankova-Limbrick 2011