Medical Technology – a UK parent's perspective
"I do think as a parent the more that medical interventions become part of our everyday life the more strongly I need to advocate for my daughter to ensure that her rights to a life in her local community are not eroded.
"Because of the immense health problems people with PMLD often face they so easily risk having their other needs overlooked, and we lose sight of the whole person."
This is an extract from Medical Technology – a parent's perspective by Jeanne Carlin in PMLD Link, Winter 2012.
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