Lead Article - The Unique Network: Supporting families challenged by rare chromosome disorders
Beverly Searle
In this article Dr. Beverly Searle, who, coincidentally, used to be a research geneticist, introduces IQJ readers to her eighteen-year-old daughter Jenny who was born with a rare chromosomal disorder. She describes some of the great trials and tribulations for families like hers and shows how Unique, the organisation she helped develop and now leads, helps families with information and real support.
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