Interconnections Worldwide

Working internationally to share information, help build knowledge and support teamwork around babies, children and young people who are disabled, marginalised or vulnerable

The home of Team Around the Child (TAC) and the Multiagency Keyworker

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Lead Article - The Unique Network: Supporting families challenged by rare chromosome disorders

Beverly Searle

In this article Dr. Beverly Searle, who, coincidentally, used to be a research geneticist, introduces IQJ readers to her eighteen-year-old daughter Jenny who was born with a rare chromosomal disorder. She describes some of the great trials and tribulations for families like hers and shows how Unique, the organisation she helped develop and now leads, helps families with information and real support.

2191 words

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