Interconnections Worldwide

Working internationally to share information, help build knowledge and support teamwork around babies, children and young people who are disabled, marginalised or vulnerable

The home of Team Around the Child (TAC) and the Multiagency Keyworker

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New research alerts from HealthMatters Community Academic Partnership

Research_Alerts'Speaking up' for the person with ID was important to parent and support worker roles. Accessing quality health care was one of the main concerns as well as advocating across other areas to negotiate wider psychosocial needs. The role of advocating was viewed as multidimensional, depending if the advocate was a parent or support worker. Parental advocacy was driven by 'caring' while support worker advocacy was influenced by the 'duty of care.' Please read further here

Adults with DD value being in research, especially research that can help them or others like them. They want to understand research, so they can make their own decision about participating or not. Researchers should do things such as include concrete descriptions, visuals, explanations, and demonstrations to help adults with DD understand. It is important for researchers to create and use research practices that help adults with DD control their research participation. Adults with DD want to learn about research from individuals they trust, select people they trust to provide input, and assess whether they can trust researchers in making participation decisions. Please read further here.  

When Latino children with autism receive high quality care, they use more health care services. Using appropriate services improves children's well-being. Please read further here

People with ID are more likely to be at risk from developing diabetes (both Type 1 and 2) as a result of having a genetic condition (i.e. Down syndrome) and leading a sedentary lifestyle (i.e. little exercise, poor nutrition, obesity, hypertension) respectively. Numbers of people with ID developing T2D will increase as they age. For over half of the people with ID their diabetes was poorly controlled. Please read further here

HealthMatters Alerts: www.HealthMattersProgram.org

New guide: Prevention and Early Intervention of Malnutrition in Later Life

This UK guide, jointly produced by the British Dietetic Association and the Malnutrition Task Force, sets out and defines the principles of best practice, the moral, legal, quality and financial case for changes in tackling malnutrition in people in later life in the UK. The guide goes a step further and presents real practical advice and support for health care, social care and care provided by voluntary organisations to deliver the changes needed to combat the current levels of malnutrition in the UK. More information here.

Assessment, definition, and classification of intellectual disability

From Jasmina Sisirak: The April Issue of Intellectual and Developmental Disabilities is a special issue with contributions on assessment, definition, and classification of intellectual disability. This issue includes comments submitted by AAIDD to the World Health Organization (WHO) on the next iteration of the International Classification of Diseases (ICD), which is anticipated to be released in 2015.

Visit here.

A guide for fathers of disabled children

father2Having a disabled child affects all members of a family. No matter if you are a new parent, or an experienced one – everyone can react in different ways to the news that their child has a disability or medical condition. As a father of a disabled child you will have to adapt to a new and sometimes challenging set of circumstances. This guide will help you learn more about practical information you may need and help you understand how other fathers have experienced having a disabled child. Guide here.

share your information  Cartoon © Martina Jirankova-Limbrick 2011