SWAN UK - Syndromes Without A Name
Did you know that between 30-40% of children with special needs do not have a specific diagnosis?
For these families life can be particularly isolating – they do not naturally 'fit' into existing parent support groups, can have problems accessing support and information and many have no idea what the future will hold for their child.
SWAN UK (Syndromes Without A Name) is a project run by Genetic Alliance UK specifically for these families. Offering information and support to families, the project offers a friendly listening ear whilst also seeking to raise awareness of what life is like with an undiagnosed genetic condition.
If you or someone you know is raising a child with an undiagnosed condition please encourage them to get in touch to see how the project can support them:
E-mail: mailto: This email address is being protected from spambots. You need JavaScript enabled to view it.
Tel: 0207 704 3141 ext. 110
