Some sources of UK-based information
The following list of organisations, initiatives and campaigns is offered for people in Australia and New Zealand wanting information about services and support in the UK. This is not intended as an exhaustive list so please This email address is being protected from spambots. You need JavaScript enabled to view it. if you need information that does not appear here. We will help if we can.
Advocacy - http://www.mind.org.uk/ - Mental health advocacy has developed in the United Kingdom over the last twenty years as one way of challenging the discrimination faced by users and survivors of the mental health system.
Alliance for Inclusive Education - www.allfie.org.uk/ - A national network of promoting inclusive education, which can support all young people to learn, play and live with each other.
Challenging Behaviour Foundation- www.challengingbehaviour.org.uk/ - wants to see children and adults with severe learning disabilities have the same life opportunities as everyone else.
Children with Exceptional Health Care Needs - www.cen.scot.nhs.uk/ - The National Managed Clinical Network (NMCN) for Children with Exceptional Healthcare Needs aims to strengthen and develop specialist services.
Communities Empowerment Network - www.cenlive.org/ - provides advice, support and representation following school exclusions. Our support entails education advocacy, restorative justice, reintegration...
Contact a Family - www.cafamily.org.uk/ - a charity for families of disabled children.
Council for Disabled Children - www.councilfordisabledchildren.org.uk/ - the umbrella body for the disabled children's sector.
Disability Horizons - http://disabilityhorizons.com/about/ - a positive, interesting and useful disability related magazine with articles and resources to help disabled people achieve whatever they wish.
DPAC - dpac.uk.net/ - Disabled People Against Cuts, fighting for justice and human rights for all disabled people at a time of austerity and welfare cuts.
Early Support Wales - www.earlysupportwales.org.uk/ - training courses and tools.
GIRFEC - http://www.scotland.gov.uk/Topics/People/Young-People/gettingitright - Getting it right for every child practice model and tools
Grandparent to Grandparent (USA) - http://www.pacer.org/grandparent/ - PACER Center recognizes that a grandparent's life is impacted by the birth of a child with a disability. Grandparents can influence a family's adjustment as well.
Handsel Project - www.handselproject.org.uk/ - working to promote effective support for the families of children who have disabilities or additional needs - with a focus on sleep deprivation.
Impossible choices for parents of disabled children? - http://www.teamaroundthechild.com/allnews/commentopinion/320-impossible-choices-for-new-parents-of-disabled-children.html
Inclusive Education - http://www.csie.org.uk/ - no discrimination on grounds of disability and special educational needs.
J is for Joint Working - http://www.teamaroundthechild.com/images/stories/journal-pdfs/jforjoint10.pdf
K is for Keyworking - http://www.teamaroundthechild.com/images/stories/journal-pdfs/kforkeyworking11.pdf
Mental Health Foundation - http://www.mentalhealth.org.uk/ - improving the lives of those with mental health problems or learning disabilities. Research, service development and information.
Mental health of children with learning disabilities - http://www.learningdisabilities.org.uk/help-information/information-for-teachers/emotional-well-being-mental-health/children-young-people-learning-disabilities/
National Children's Bureau - www.ncb.org.uk/ - supports children, young people and families and those who work with them.
Parent Carer Forum - http://www.cafamily.org.uk/what-we-do/parent-carer-participation/what-is-a-parent-carer-forum/ - a group of parents and carers of disabled children who work with local authorities, education, health and other providers.
Parents and professionals together - www.cafamily.org.uk/what-we-do/parent-carer-participation/ - when parents and professionals work together, recognising each other's expert knowledge, informed decisions are made...
Personal Independence Payments (PIP) - https://www.gov.uk/government/policies/simplifying-the-welfare-system-and-making-sure-work-pays/supporting-pages/introducing-personal-independence-payment - new system supporting disabled people to lead independent and active lives.
Personal Independence Payments - http://www.cafamily.org.uk/news-and-media/new-contact-a-family-guide-launched-on-the-day-personal-independence-payments-start/ - a guide for families of disabled children.
Postural Care - www.posturalcareskills.com/ - primary aim is to share high quality, evidence based information with everyone interested in protection of body shape.
Sort breaks (AKA respite) - http://www.shortbreaksnetwork.org.uk/aboutus/howtohelp - Short breaks make a vital difference to disabled children and their families.
Together for Short Lives - http://www.togetherforshortlives.org.uk/ - for children with life-threatening and life-limiting conditions.
Useless and harmful therapy - http://www.teamaroundthechild.com/allnews/commentopinion/598-useless-and-harmful-therapy-in-the-horizontal-landscape.html
Wired Child - wiredchild.org/ - protecting children from wireless technology.
Young Minds - http://www.youngminds.org.uk/ - For children and young people's wellbeing and mental health.
