Information needs of young people with cerebral palsy and their families during the transition to adulthood: a scoping review

The findings shed light on the burden felt by individuals and their families when information is not available when needed

Researchers at CanChild conducted a scoping review to examine what is currently known about information needs of young people with CP during transition to adulthood. Young people and their parents have been found to lack information about where to find services in adulthood, how to access the services, and what to ask during the transitional process.

The findings shed light on the burden felt by individuals and their families when information is not available when needed. Ultimately, information must be more accessible and readily available to support people throughout transition so they are better prepared for adulthood.

Authors: Freeman M, Stewart D, Cunningham CE, & Gorter JW. (2018). Journal of Transition Medicine.

Go to: https://www.degruyter.com/view/j/jtm.ahead-of-print/jtm-2018-0003/jtm-2018-0003.xml?format=INT