Authors: Nguyen L, Bootsma J, Di Rezze B, Jack S, Ketelaar M, Gorter JW.
Siblings share a lifelong bond in their relationship. When a brother or sister has a neurodisability, a sibling may choose to provide support. This review aims to summarize the characteristics and outcomes of programmes designed to prepare siblings in their future roles to support their brother or sister with a neurodisability.
The researchers describe how they will carry out the scoping review in this protocol paper. In partnership with the Sibling Youth Advisory Council, they plan to share the findings with stakeholders such as healthcare providers, researchers, and patient and family advocacy groups.
[BMJ Open. 2021 Jul 7;11(7): e053184. doi: 10.1136/bmjopen-2021-053184]