New: Breaking down Barriers – about families at risk of having a child with a genetic condition. Invitation to join if you are in the UK

Kerry Leeson-Beevers writes: Following the success of Alström Syndrome UK 's Asian Mentoring Scheme, The Sylvia Adams Charitable Trust would now like to invest additional funds to  develop this work further.

A new project called Breaking down Barriers is aimed at facilitating patient organisations and support groups to join together

- to share examples of best practice

- to develop new guidelines to support families at increased risk of having children with a genetic condition - but who are unlikely or unable to access mainstream services.

Please get in touch if you are in a patient organisations or support group supporting families with a genetic condition. I will send you more information so that you can join the project if it is relevant to you.

Please circulate this information to any groups who you think may be interested in this project

Many thanks

Kerry Leeson-Beevers

National Development Manager Alstrom Syndrome UK

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