Genetic muscle disorders affect both males and females, of all ethnicities, from new-born babies to the elderly. Severity of symptoms vary across the different disorders but all involve skeletal muscle weakness and many include heart and lung problems.

By talking to every New Zealander living with a genetic muscle disorder and getting a better picture of how the condition affects them, we can help to improve health care services in New Zealand and deliver them to where they are needed.

Participation in this study will involve answering some questions about your condition and everyday life.

You can nominate someone close to you to take part too. A researcher can come and visit you at home or you can choose to complete the questions over the phone, or complete them yourself online.

Please contact the MD-Prev Research Team:

Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

Phone: 0800 MDPREV (637738)

Text: 0212458597