Charlie (4 years old) has GMI gangliosidosis. In this video from Australia we learn how important palliative care is

This film stars Charlie, his sister Ali and parents Liz and Dave and also features Dr John Collins, Head of Service: The Department of Pain Medicine and Palliative Care Service at the Children's Hospital at Westmead (NSW Australia). 

It tells the story of 4-year-old Charlie, who has GMI gangliosidosis, and his family and highlights the value of a strong palliative care team when providing palliative care in the home.

In the video Dr Collins explains:

The very words 'palliative care' can raise all sorts of anxieties in families because they associate that with terminal care, in other words, the last few days of life. The truth of the matter is ... we consider terminal care to be a small component of what they [the palliative care team] do.

Charlie's dad, Dave:

The palliative team have always been there for us. They've always helped us. They are always telling us íf we need more help to let them know.

Charlie's story describes how the palliative care team can support a family to enjoy the precious times and special moments they have with their child and how they can assist them in making informed choices about the care that needs to be provided.

To watch this short film: http://www.littlestars.tv/short-films/charlies-story/