UK survey from Together for Short Lives – can you help?

  Katrina McNamara writes: Today we begin a conversation to engage and listen to members, families, young people, professionals, service providers and those with an interest in children's palliative care to help us develop our strategy from 2018 onwards.

This is an opportunity to shape and share an agenda for the future to secure a better quality of life and end of life care for children with life-limiting and life-threatening conditions.  We want to be bold and consider what a decade of difference might look like for children's palliative care, what great children's palliative care should look like and what our role could be in helping make that happen.

We want this engagement to be open, stimulating and ambitious.  The engagement will run over two phases:  Phase 1 will run until 17th May and begin with broad top line questions; In phase 2 (August – October) we will share an outline strategy with you for further comment.

We’d love to hear what you think.  You can share your thoughts and ideas in four ways:

1.   Respond to our short survey here by sharing your thoughts on our key questions:  What does great children’s palliative care look like in 2028?  What needs to happen in order to get there? What could Together for Short Lives’ role be in achieving that?

2.   Submit a short article or blog to us (500 – 700 words) which addresses the questions above – we would like to publish these on our website and publish them widely to encourage wider thinking or debate (please email This email address is being protected from spambots. You need JavaScript enabled to view it.)

3.   Share our engagement approach with your stakeholders and promote this link in newsletters and social media using the twitter hashtag #forthe49000

4.   Join one of our forthcoming strategy meetings (which we will write to you shortly about) or invite us to one of your meetings or networks to discuss the strategy and the opportunities ahead

You can also read and share Barbara’s blog that kicks off the process.

We want all our colleagues and members to have a genuine stake in our work and have a shared ownership of the strategy.  So do get in touch if you have any queries, or if you have any ideas on how we can improve our engagement on this piece of work.

Katrina McNamara | Director of Service Development and Improvement

Together for Short Lives, Tel: 0117 989 7820

2nd Floor, New Bond House, Bond Street, Bristol, BS2 9AG

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