SWAN UK (syndromes without a name) is holding two free undiagnosed genetic conditions information events for families in November. UK

Swan Logo v3 RGB SquareSWAN UK - the only dedicated support network for families of children and young adults with undiagnosed genetic conditions in the UK

 

The events are free to attend but booking is essential. Email or call us to let us know the names of those who will be attending and if you have any dietary requirements: This email address is being protected from spambots. You need JavaScript enabled to view it. / 020 7831 0883.

The talks will cover:
- Why genetic testing takes so long and some conditions are so hard to diagnose.
- An update on Deciphering Developmental Disorders (DDD)/100,000 Genomes Project.
- What life is like raising a child with an undiagnosed genetic condition.

SWAN UK is the only dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK. To find out more visit: undiagnosed.org.uk

 

19 November. 10:00-14:00

St George’s University Hospitals NHS Foundation Trust
Blackshaw Road, Tooting, London, SW17 0QT

22 November. 10:00-14:00

MS Lecture Theatre

Research Innovation Learning and Development (RILD) building, Royal Devon and Exeter Hospital, Barrack Road, Exeter, Devon, EX2 5DW

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