These are part of an international project looking at mental / psychological / emotional health in families who have a baby or pre-school child with special needs
We are concerned for the child, parents and close family members. Our concern embraces children with serious illness and children with short or uncertain life expectancy.
We have produced a free Guide for use in any country to help parents talk about these issues with their professionals. Click here to download.
The questions the seminars will discuss include:
What are the implications for bonds of attachment?
When does prolonged parental stress and fatigue tip over into mental ill-health?
How far do our interventions get in the way of normal baby and child activity?
How can we protect and nurture child and family’s quality of life?
The UK seminar series, facilitated by Peter Limbrick, aims to generate discussion of our concerns with professionals and parents. This Seminar can come to your team or group. See below.
In 2017 Interconnections published Early Childhood Intervention without Tears: Improved support for infants with disabilities and their families by Peter Limbrick. Discussion at the seminars is informed by this book and delegates each receive a complimentary copy in advance of the seminar. (The normal selling price is £22.)
ECI without Tears Seminars List
Cost: £45 per professional delegate. £60 for a professional and parent coming together.
Liverpool: 11th June 2018 at Liverpool Quaker Meeting House, L1 3BT. 1.30 pm to 4.30 pm.
Wakefield: 12th June 2018 at Cedar Court, WF4 3QZ. 1pm to 4pm.
Exeter: 26th June 2018 at The XCentre, EX2 4AD. 1pm to 4pm.
This seminar can come to your team at your venue
Costs on UK mainland are likely to be:
£45 per professional delegate, with a minimum cost of £360 (= 8 x 45)
No charge for parents, and I hope there can be 2 or 3 parents or parent representatives.
Car mileage at 50p/mile.
B&B if necessary. e.g. Travelodge.
Further information about the Seminars
We will have in mind children with a multifaceted condition which can be any combination of intellectual, physical, sensory, communication disability, short or uncertain life expectancy, serious illness.
The seminar is facilitated by Peter Limbrick and will be an opportunity for short presentations, informal plenary discussions and small-group discussions sharing wisdom, knowledge, experience and aspirations. The focus will be on these issues:
Babies and pre-school children with these complex conditions have very different lives from those typically developing. This might include stress, anxiety, impaired bonding, poor nutrition, poor sleep, pain, discomfort, close contact with many ‘non-family’ people, being uncelebrated and under-valued, kept busy with treatments and therapies, no time for normal baby things, etc. What can we do to help?
Families are often under severe stress and anxiety from the start. Daily life can be exhausting trying to keep the family going and meet the child’s needs. Guilt can be a major factor. There can be too little time to do the normal baby things and bonding might be difficult. Relationships, accommodation, money, sleep, work and money can all become problematic. The family might become excluded from their normal social activity. Parents can feel out of control of family life. Many parents describe their life as a continual battle. What can we do to help?
Attachment: There will be some emphasis on promoting and nurturing attachment between infant, parent and other family members.
There will be opportunities to discuss:
- the term ‘multifaceted condition’ instead of ‘multiple disabilities’
- how teams can provide a multifaceted intervention system
- how service providers can make the best use of practitioners' time.